Jameela Jamil Confirms Having A Rare Disorder Called ‘Ehlers-Danlos Syndrome’

Actress and presenter Jameela Jamil rose to fame after her appearance in the fantasy-comedy series The Good Place. More recently, she has been in the spotlight for her work as a body positivity activist than her acting endeavors. She has always believed in being transparent about her life experiences and continuing that she even shared having a tissue disorder which […]

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Amanda Seyfried Shares Rare Pic Holding Hands With 2-Year-Old Daughter

Mother-daughter moment! Amanda Seyfried rarely posts pics of her 2-year-old daughter, but shared a sweet moment with the little one on Thursday, August 8. “#tbt @latenightseth,” the actress, 33, captioned the Instagram upload. “#takeyourdaughtertowork.” In the pic of Seyfried and her daughter, the toddler held her mom’s hand while wearing a pink dress. Us Weekly confirmed that the Mamma Mia! […]

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Behati Prinsloo's Rare Pic With Daughters: Wouldn't 'Change a Single Thing'

Behati Prinsloo has her hands full! The model posted a picture of an adorably rowdy moment with her daughters. “Here’s to the sleepless nights, bleeding nipples, crying, laughing, the highest of highs and lowest of lows and everything in between, I won’t change a single thing,” the Victoria’s Secret Angel, 31, wrote on her Thursday, August 8, Instagram post. “Being […]

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FDA approves treatments for heart failure caused by rare disease

(HealthDay)—Vyndaqel (tafamidis meglumine) and Vyndamax (tafamidis) capsules have been approved to treat adults with cardiomyopathy caused by transthyretin mediated amyloidosis (ATTR-CM), the U.S. Food and Drug Administration announced today. Recommended dosage is four 20-mg capsules of Vyndaqel once daily or a single 61-mg capsule of Vyndamax once daily, according to the manufacturer. The two drugs, which are the first approved […]

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Shining light on rare nerve tumors illuminates a fresh path for fighting cancer

When a protein named “Merlin” fails to do its job, people can develop slow-growing, life-disrupting auditory nerve tumors that can disrupt their hearing and balance. This rare condition is called neurofibromatosis 2 (NF2). Now scientists at Cincinnati Children’s have discovered much more about how Merlin does its job—by working behind the scenes through a network of more than 50 other […]

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Conception by IVF may increase risk for rare childhood cancer

(HealthDay)—There is a small association between conception by in vitro fertilization (IVF) and childhood cancer, particularly hepatic tumors, according to a study published online April 1 in JAMA Pediatrics. Logan G. Spector, Ph.D., from the University of Minnesota in Minneapolis, and colleagues used data from the Society for Assisted Reproductive Technology Clinical Outcomes Reporting System on IVF cycles that resulted […]

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Researchers find targeting rare form of cystic fibrosis earlier prevents organ damage in ferrets

A team of researchers from the University of Iowa, University Medical Center Utrecht and Vertex Pharmaceuticals Incorporated, reports that earlier administration of a drug already given to patients with a rare form of cystic fibrosis can prevent organ damage—at least in ferrets. In their paper published in the journal Science Translational Medicine, the group describes their study of the impact […]

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FDA approves drugs for treatment of two rare blood diseases

(HealthDay)—Two drugs have been approved by the U.S. Food and Drug Administration for the treatment of rare blood diseases, the agency announced Friday. Elzonris (tagraxofusp-erzs) infusion was granted the first approval for the treatment of blastic plasmacytoid dendritic cell neoplasm (BPDCN) in adults and children aged 2 years and older. Researchers investigated the efficacy of Elzonris in two patient cohorts […]

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Treating a rare genetic disorder that causes colon cancer in children

A University of Houston pharmaceutical scientist is developing a new drug which could bring relief to children suffering with Familial Adenomatous Polyposis (FAP), a rare genetic disorder characterized by hundreds—if not thousands—of colorectal polyps. This hereditary cancer predisposition syndrome occurs in 3-per-100,000 live births and, if left untreated, causes colorectal cancer in patients nearly 100 percent of the time. Prior […]

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